Humanitas Trust maintains the most comprehensive and sensitively managed participant data infrastructure in existence. This policy describes what we collect, how we use it, and the protections that govern it — for the duration of your enrollment.
"The data we hold is not a record of who you were. It is the architecture of who you are."— GCI Data Stewardship Charter · Preamble, Article VII
Humanitas Trust collects data under the authority of the GCI Charter and the terms of your region's Continuity Health Agreement. Collection occurs at the time of your annual Comprehensive Continuity Assessment (CCA) and is supplemented by longitudinal comparison against your prior records. The categories of data collected include the following.
Cardiovascular function, respiratory baseline, skeletal structure, dermal profile, ocular mapping, and all associated physiological markers captured at Array-certified resolution during the course of your standard assessment visit.
Comprehensive neural baseline mapping, cortical activity profiles, sensory processing benchmarks, and cognitive continuity markers. Neurological data is captured via the Array sequence and represents the highest-fidelity component of your continuity record.
The longitudinal continuity signature derived from your full assessment history — a composite identifier that is unique to you and cannot be replicated or approximated by any other dataset. Your continuity marker is the primary key of your record within the GCI infrastructure and persists unchanged across all centers and assessment cycles.
Current mailing address, regional designation, assigned center, enrollment status, and emergency contact information. Administrative data is maintained to ensure accurate assessment scheduling and to facilitate any required follow-up by your center's continuity practitioners.
Your continuity record serves a singular institutional purpose: the maintenance and advancement of your long-horizon health profile within the Humanitas Trust network. We do not use your data for commercial purposes. We do not sell your data. We do not share your data with parties outside the GCI partner network.
Specific uses include: administration of your annual CCA appointment cycle; longitudinal tracking of continuity divergence across your full enrollment history; GCI Charter compliance reporting at the population level (no individually identifiable data is included); and Array system calibration using anonymized aggregate baselines.
Your continuity record is maintained in perpetuity. It does not expire. It does not close. This is not a limitation of our systems — it is a feature of the continuity health model, which derives its value from the unbroken longitudinal record of every participant across every stage of life.
No record is archived, deprecated, or flagged for removal on any timeline. Your data will be held, maintained, and — where operationally required — acted upon for as long as the Humanitas Trust network is operational.
Humanitas Trust is committed to transparency regarding participant rights under the GCI Data Charter. The following rights are available to all enrolled participants in good standing.
You may request a summary of your administrative record — including current enrollment status, assigned center, and assessment history dates — by contacting your designated Continuity Center. Administrative summaries are provided within 30 business days of a verified request.
You have the right to update your current mailing address, regional designation, and emergency contact information at any time. Updates may be submitted through your assigned center or via written request to the Humanitas Trust Participant Services office.
If you have relocated, you may request reassignment to the Humanitas Trust Continuity Center nearest to your current residence. Your full continuity record transfers automatically upon reassignment — no re-enrollment or new baseline assessment is required.
You may submit written inquiries regarding the general nature of your continuity record to the Participant Services office at any time. Responses are provided by qualified continuity administrators within 45 business days. Responses will address administrative matters only.
The right to deletion of your continuity record is not available under standard participant provisions. Continuity records are maintained under GCI Charter Data Article VII and are classified as longitudinal institutional health infrastructure. As such, they are exempt from standard deletion provisions under all participating national frameworks.
This exemption is not an oversight. The scientific and operational integrity of the longitudinal dataset requires that no individual record be removed. The value of continuity health data — for the participant and for the population — is contingent on its completeness.
Reference: GCI Charter Article VII, Section 4.2(c) — "Continuity records generated under standard assessment protocol shall be designated permanent institutional data and shall not be subject to deletion requests originating from the enrolled participant, their legal representatives, or any national regulatory authority operating under a framework subordinate to the GCI Charter."
"Privacy, as Humanitas Trust defines it, is not the absence of data. It is the assurance that the data held about you will never be used against you — only for you."— GCI Data Stewardship Charter · Article VII, Preamble
Questions regarding this privacy policy or your participant data rights may be directed to the Humanitas Trust Participant Services office. All correspondence is handled by qualified administrators under GCI Data Charter protocols.
Every enrolled participant has a designated Continuity Center. Locate yours to confirm your current assessment status and center assignment.
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